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Wiley InterScience

Bioethics

Bioethics

Volume 22 Issue 3, Pages 157 - 165

Published Online: 1 Feb 2008

Journal compilation © 2010 Blackwell Publishing Ltd



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PROTECTING GROUPS FROM GENETIC RESEARCH
DANIEL HAUSMAN 1
  1 University of Wisconsin-Madison
Correspondence to  University of Wisconsin-Madison – Philosophy, 5185 Helen C. White Hall 600 N Park Street Madison Wisconsin 53706, United States. T: 608 354-6120 F: 608 265-3701, dhausman@wisc.edu
Copyright Journal compilation © 2008 Blackwell Publishing Ltd.
KEYWORDS
genetics research • research risks • groups

ABSTRACT

AbstractINTRODUCTION1 PROCESS-RELATED VERSUS OUTCOME-RELATED THIRD-PARTY HARMS AND THE ROLE OF IRBS2 GROUP HARMS3 A TAXONOMY OF GROUP HARMS

Genetics research, like research in sociology and anthropology, creates risks for groups from which research subjects are drawn. This paper considers what sort of protection for groups from the risks of genetics research should be provided and by whom. The paper categorizes harms by distinguishing process-related from outcome-related harms and by distinguishing two kinds of group harms. It argues that calls for community engagement are justified with respect to some kinds of harms, but not with respect to others; and it cautions that community engagement may itself be harmful.


DIGITAL OBJECT IDENTIFIER (DOI)
10.1111/j.1467-8519.2007.00625.x About DOI

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